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speaking up and out, even when our voice shakes, matters

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Online Forum – Co-creating an Emergency Department Alternative in the Adelaide CBD by LELAN and TACSI (closes Friday April 3rd)

LELAN and The Australian Centre for Social Innovation (TACSI) have been facilitating a piece of work on behalf of the Office of the Chief Psychiatrist (OCP).

This work, through the co-creation of a Philosophy of Care, will support the design of a service and space (‘the Centre’) that will operate as an alternative to how emergency departments are currently accessed by people experiencing mental health crisis and/or distress.

People with lived experience of accessing an Emergency Department have participated in co-design sessions and we want to hear from more people. We want to hear your insights and response to what has been emerging from this work so far and help us fill in gaps that are missing or need to be strengthened. 

You can read more about this work here or join the conversation on our Forum here.

Online Survey – Sharing Lived Experience Wisdom about Community, Connection and Looking after our Mental Health during COVID19 by LELAN (closes April 30th)
At LELAN we acknowledge the significant impact that Coronavirus (COVID-19) is having on people around the world. In our own community there is heightened emotion, uncertainty and confusion on what steps to take to look after ourselves and each other. These responses are valid and they make sense.
We have designed a survey for people with lived/living experience, to check in with how you are doing and as a means to share valuable strategies for surviving and living through this uncertain time. It will also support LELAN’s advocacy efforts in ensuring that the needs of people with lived experience of distress and/or mental health issues are heard and addressed in our State’s response to COVID19.
Complete the survey here.

Online Survey – National Peer Workforce Development Guidelines by National Mental Health Commission (closes Tuesday March 31st)

The findings of this survey will inform the National Mental Health Commission’s ‘National Peer Workforce Development Guidelines’ (referred to as the Guidelines). The project is conducted by a research team at RMIT University and led by a peer/lived experience researcher with extensive experience in peer workforce development both within Australia and internationally, Dr Louise Byrne

The survey will take approximately 30-40 minutes and is best completed on a computer as some questions will ask you to share resources through a file upload (if applicable).

If you have any questions or concerns regarding this survey, please contact the research team at RMIT: Helena Roennfeldt (for queries regarding content of the survey) via helena.roennfeldt@rmit.edu.au or Dr Lena Wang (for technical support regarding the survey) via Lena.wang@rmit.edu.au . 

Access the survey here.

Share your Thoughts – Health Outcomes and Experiences for People with Disability by Health performance Council (closes Friday April 3rd)

Your input will help us understand the key areas that need to be explored to improve the health and disability systems and the outcomes for the community with lived experience of disability.

The Health Performance Council (HPC) are wanting to understand:

  • The issues that people with disabilities experience, 
  • How they might impact on their overall health and wellbeing and, 
  • What would matter most if the health system were to change.

There are multiple ways to get involved: completing an online submission form; attending one of their events (Drop in sessions, Listening sessions; Follow up forum); or by emailing them at Health.HPCengagement@sa.gov.au . 

Access more information here or contact HPC via email  Health.HPCengagement@sa.gov.au or call (08) 8226 3188. 

Online Survey and Forum - National Safety and Quality Digital Mental Health Standards (Adelaide Forum scheduled for Thursday April 2nd)

The Australian Commission on Safety and Quality in Health Care is developing National Safety And Quality Digital Mental Health (NSQDMH) Standards in collaboration with consumers, carers, clinicians, service providers and technical experts to address key safety and quality risks for digital mental health service users.

The development of the NSQDMH Standards is a significant first step in providing safety and quality assurance for digital mental health service users, and best practice guidance for service providers and developers.

The Commission is seeking feedback on the draft standards from consumers and carers, clinicians, service providers and any other interested stakeholders.

Complete the survey here and/or register for the online forum here.

Focus Group – Activating Lived Experience Leadership Research Project by LELAN and UniSA (throughout April and May)

This project aims to describe how lived experience advocacy and leadership across the mental health sector can be better defined, recognised and utilised in South Australia. We aim to also encourage systems change within the current health system culture.

This project may be relevant to you if you have personal lived experience or are a carer of a person living with mental health issues and are active as an advocate, representative, community speaker or peer worker. These are all roles where leadership skills come into play in terms of raising awareness, working with services and systems, and promoting lived experience perspectives.

Focus Groups are currently moving online with dates to be announced soon. You can register your interest by emailing Heather.McIntyre@unisa.edu.au , Mark.Loughhead@unisa.edu.au or ehodges@lelan.org.au 

Access more information here.

Online Survey - National Fifth Plan Consumer and Carer Surveys (closes Monday April 13th)

The National Mental Health Commission conducts annual consumer and carer surveys to help inform reporting on the progress of mental health and suicide prevention reform in Australia, specifically the Fifth National Mental Health and Suicide Prevention Plan.

This year, the Commission is seeking feedback from consumers and carers on their experiences of mental health services in the past 12 months. We have launched two national surveys – one for consumers and one for carers – to better understand their unique experiences and needs.

Complete the consumer survey here or the carer survey here.

The survey should take approximately 10 to 30 minutes to complete 

Research Team Seeking Consumer Leaders

A team of researchers at Melbourne University are conducting research on consumer leadership. They are looking at the ethical principles that may underlie decision-making associated with consumer leadership.

The team consists of a PhD student and consumers engaged in a variety of consumer roles. They hope the research will help to better understand consumer leadership, as distinct from other forms of leadership, and that this might help promote and support consumer leadership practices.

The research team are looking for people considered to be consumer leaders. These might be people who don’t necessarily identify as ‘consumers’ (but do identify, for example, as having lived experience of mental distress), people in formal or informal roles, in paid or unpaid roles; they can be people who are more well-known or less so. 

If you are a consumer leader and/or know people that are, contact Stephanie via stewarts2@student.unimelb.edu.au or 0424 707 587.

Online Survey - Your Lifeline Experience

The University of Canberra has teamed up with Lifeline Australia to conduct this survey. The survey will take around 15 minutes to complete. It will ask you about your expectations of Lifeline crisis support services, and the experiences you had with Lifeline.

The survey will help to build Lifeline’s future capacity and effectiveness in Australia and advance knowledge for crisis support services.

Access the survey here.

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Video Interview - Learning from Lived Experience Project by LELAN (throughout April)

We are looking for people with lived/living experience of mental health distress and/or crisis – that includes experiencing suicidal thoughts or living with a suicidal ‘part’, surviving a suicide attempt/s or surviving the suicide of a loved one – to be filmed sharing parts of their story. Video content will take a similar format to ABC’s ‘You Can’t Ask That’ with participants answering targeted questions around their experience.

The conversations will focus on times of crisis/distress and any support received. We want to know what helped, what harmed, and what people hope for in the future around these experiences and the types of help or support that is available. 

More detailed information around consent, safety and confidentiality can be found here. Expressions of Interest can be completed here

Further enquiries can be made by emailing info@lelan.org.au.   

Job Opportunity - Aboriginal and/or Torres Strait Islander Peer Roles with headspace Centres Across Adelaide

Multiple positions available for Aboriginal and/or Torres Strait Islander person’s with lived experience of social and emotional wellbeing concerns and recovery. 

No formal qualification is required as the organisation will support people to obtain a Certificate IV.

Positions are available at headspace Adelaide, Edinburgh North and Onkaparinga centres.

Enquiries and applications should be sent to employment@sonder.net.au . Applications close 5pm on Friday March 27th.

Join the Lived Experience Leadership & Advocacy Network

Be informed, get involved and help to strengthen the voice and influence of lived experience in South Australia. Also benefit from reduced member rates for workshops, access to our closed Facebook group, a quarterly members-only newsletter and more.